Low...

Playlist
Sylvian/Fripp – Earthbound Starblind
Robert Fripp – A Blessing of Tears

Around 2am this morning, Anne and I were woken by strange noises from Pam’s room...

We went though and found her having a massive seizure...

We called an ambulance which arrived within 10 mins but she was still seizing – she had a further two episodes at the house and was taken unconscious into the ambulance...

I went with her to Edinburgh Royal Infirmary (ERI) A&E arriving around 3:10 am...

At A&E she had a further four seizures by 7:15am, including one whilst on the table having a CT scan...

I was advised it showed no significant change in the tumour but a lot of swelling around it...

Pam was transferred to the Assessment Base at the ERI just after 8am and was there for most of the day, which I spent with her...



She was in a very bad way indeed, although there were no further seizures - she could only say “yes” or “no” and had little or no strength or movement in her right side...

She seemed able to understand what was going on and could still laugh at my rubbish jokes - she knew what she wanted to say but she just couldn’t make the words come out...

In the evening, Pam was taken to the Western General under their Neurology Department...

I had explained to the doctors earlier in the day that she was in the middle of her chemo and it was agreed that this could continue and not be interrupted...

She may well now be at the Western for a while and I am liasing with the team at The Beatson in Glasgow to ensure she continues to receive the best possible care...

At present, the situation looks to be:-
(a) Prof Chalmers' chemo prescription is continuing
(b) Neurology at the Western will try to determine the best anti seizure and anti brain swell regimen for Pam

I visited her at the Western around 8 this evening and, as you might imagine, it was terrible to see her so unable to do anything and have no way to tell anyone what she wants or needs...

To have this happen to her when she was in with a chance of some decent quality time is a real killer. I am just hoping there is some way of reducing the swelling, which might give her some speech back, and that the loss of use of her right side can somehow be ameliorated...

So that's the story today which is not a good one...

Back home, I felt beaten by the day’s events...

I’ve written this a couple of days later – I needed that time because what happened today was one of my worst days ever...